Monday, July 2, 2007

Grey Matter and Nerves of Titanium

I was with Amacker today when a neurologist came by to check out Amacker's cognitive skills and reflexes.  For the most part Amacker is doing great.  Since many of you will start visiting Amacker in the near future, it is necessary for me to inform you about a few of the places she isn't doing as well.

Amacker is missing some of the links between speech and thought.  For example, she cannot spell fairly simple words.  When asked to spell world, she says w-r-d, and looks very satisfied, as if she knows she's correct.  When asked to do it again, she says w.... and simply cannot come up with the rest.  When asked to subtract 7 from 100, she starts talking about how she's always sucked at math.

The fact that her sense of humor is so intact has actually hidden some of the deeper problems.  She uses it to hide what is a difficult reality, and probably embarrassing as well.

Amacker has fairly good motor skills.  Most everything works, except she cannot move her left ankle upwards.  She can, however, wiggle toes on that foot.  More troublesome is the fact that she cannot raise her left wrist.  It is fairly limp.  This is not unexpected, given the clean break in that arm and the inevitable nerve damage that would come from such a break, but when asked to work it, she says, "well, I had Carpal Tunnel Syndrome before the accident -- it never works."  Her wrist was painful and weak before, but never limp.

The reason I tell you these things now is because they have implications on your visits.

Amacker has shown no inclination to read and has trouble with memory.  That means reading books and web surfing are difficult for her.  Further, she is very saddened to discover the parts of her brain that aren't working correctly.  As you visit her, be sensitive as to what you ask her to do.  As far as I can tell she has little interest in visual stimulation, though she is asking for audio books, music, and possibly an audio language lesson.  (I know that last one seems stressful, but since she's rebuilding connections in her brain and has plenty of free time, it might be a great time to learn French!)

All that said, you might want to read her your card if you bring one.  You might want to read her a book, tell her stories, talk with her, but don't be surprised if she gets frustrated.   Also know that she has sudden outbursts of tears.  She will focus on one thing in conversation.  Lately it's been how much she misses her cat.  This doesn't mean we should smuggle in her cat to see her.  It's just one of the few things she can really remember clearly right now. Oh, and she sleeps a lot.  Let her.  The doctor explained to me that all of this is fairly common for someone who's been through what she has.

Finally, we don't know about the rate in which she'll heal from these injuries.  The wrist and ankle will require physical therapy and possibly some nerve repair.  The brain will take some mental exercises and time.

7 Comments:

Ami said...

the left wrist thing is not a problem
i had that happen to my right arm and rib broken thing...
of course you cannot move your wrist when have just had your arm set...
nor can you pick up your arm... also it is probably in a silly painfull position... all the muscles will have to be released with a physical therapist through time.

ami sun

July 2, 2007 6:02 PM  
Saz said...

Reminds me of a book: My Stroke of Insight. I first heard about the book when the author was interviewed on NPR. She is a neurologist who describes her own experience of having a stroke and what she did to rebuild the pathways in her brain http://www.amazon.com/My-Stroke-Insight-Scientists-Personal/dp/1430300612/ref=pd_bbs_sr_1/102-3250925-8118534?ie=UTF8&s=books&qid=1183425378&sr=8-1

July 2, 2007 6:20 PM  
Lisa Linhares said...

Just wanted to say thank you again Richard for the time you put into your updates. They have been an outstanding tool to keep us in the loop without overwhelming you wih questions.

I look forward to reading them and appreciate you honesty and humor. You like your sister have a great talent!

July 3, 2007 7:58 AM  
Chef Juke said...

Richard,

The Aphasia Amacker is experiencing sounds much like what my Mom has experienced since her stroke a few years back. While this can be extremely embarrasing for the person suffering it, and difficult for friends and family to deal with - in many cases of stroke or other brain injury, the Aphasia symptoms can diminish partially or totally over time and with speech therapy.

My guess is that it's far too soon to tell the extent of the damage/symptoms and as well, too soon to get a reasonable prognosis of how well she will recover. Patience is the key.

From not being able to say my name correctly for the first few weeks after her stroke, my Mom now speaks very well and has been a volunteer at the stoke center that treated her for the last 2 years helping others get over the scary first few weeks after suffering a stroke.

Hang in there....

-Chef Juke
"EVERYbody Eats when they come to MY House!

July 3, 2007 9:50 AM  
Lisa said...

It will be a long road, and Amacker will most suredly have to work very hard, but I have all faith that she will continue to improve week by week. The body is an amazing thing and everyone's love and support will tremendously affect the healing process.
Thanks Richard, and love and blessings for Amacker! **lisa & eric weitzmann

July 3, 2007 10:11 AM  
rachel said...

You go, grey matter, you go. I know you can heal neural pathways in amazing ways.

My dad was in a bad car accident 2 years ago and spent lots of time dealing with re-hooking up (or making new) neural pathways. Simple math and spelling were hard for him too, but most of all he had a hard time dealing with the embarassment and fear--especially arounf not knowing who people were. He lost lots of pathways around face-to-identity matching. I had bubbles in my brains from diving (lo, the bends) and I spent months afterwards searching my brains for what I'd lost, looking for gaps. It was scary. It's an identity crisis, but a physical one.

I send hope and love. Amacker is delightfully, by all accounts still Amacker. Ain't nobody defined by and admired for their mad subtraction abilitities. _That_ is a fantastic thing to loose...make some flashcards and relearn it. Humor is much less flashcardable. :)

July 3, 2007 11:47 AM  
Saz said...

This post has been removed by the author.

July 3, 2007 1:13 PM  

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